Telegram RegisterThe public register of Telegram

Channel

Всероссийский союз пациентов (ВСП)

@PatientsRu

On this record: Growth · Engagement · What this channel posts · Reactions · Posts · Citations · Handles named that no longer answer · Telegram's recommendations · Cite this entry

1,700subscribers

+2 since we began measuring on 7 August 2026

Risers and fallers across the register · movement among entries of 1,000–3,162.

Register entry

Telegram ID-1001199118179
TypeChannel
Username@PatientsRu
CreatedBetween 1 March 2018 and 30 June 2021— estimated from Telegram’s id allocation, not measured. How this range is calculated.
First recorded7 August 2026
Last confirmed live11 August 2026
Measurements held3
Confirmed unchanged2 times, most recently 11 August 2026
On Telegramt.me/PatientsRu

Growth

1,6981,7001,6997 Aug 2026, 08:53 — 1,698 subscribers7 Aug 2026, 09:02 — 1,698 subscribers8 Aug 2026, 02:07 — 1,700 subscribers7 Aug 2026, 08:538 Aug 2026, 02:07
3 measurements taken within a single day, net +2. Dots are measurements; the straight line between them is drawn to join them, not to claim we know the path taken in between — snapshots are recorded only when a count changes, so gaps mean “no change observed”, never “interpolated”. The vertical axis spans 1,698–1,700 and does not start at zero.
Measurement log — every subscribers count we have recorded
Measured (UTC)SubscribersChange
8 Aug 2026, 02:071,700+2
7 Aug 2026, 09:021,698no change
7 Aug 2026, 08:531,698first reading

Engagement

20 posts held, back to 26 May 2026the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 2 pagesof Telegram’s post history, 20 posts per page.

ERR · 30 days
15.3%
avg views ÷ 1,700 subscribers
Avg views / post
261
4 posts measured
Reaction rate
2.30%
reactions ÷ views · ER floor
Posts in window
4
of 20 held

ERR is average views per post over the last 30 days divided by subscribers, the definition TGStat uses, so this figure is comparable with the one you will see elsewhere. It falls structurally as a channel grows: a high ERR on a small channel and a low one on a large channel describe reach mathematics, not quality. We publish the figure and the sample it came from and pass no verdict on it.

ER is defined industry-wide as (forwards + reactions + comments) ÷ views— note the denominator is views, not subscribers. Telegram’s public web preview carries views and reactions but not forward or comment counts, so the reaction rate above is the reactions term only and is therefore a floor: the true ER for this channel is higher by an amount we have not measured and will not estimate.

What these figures were computed from
WindowRolling 30 days · latest post in window 6 August 2026
Posts held20 (26 May 20266 August 2026)
Views total1,042
Reactions total24
Forwards / commentsnot exposed by the public surface — not measured, not estimated
Readings taken7 Aug 2026, 17:43 UTC

Views are a single reading per post, taken at the time above. A post published in the last day or two is still accumulating views, which pulls the 30-day average down slightly. That is a property of the standard definition rather than a fault in it, so we keep the definition rather than “correcting” the number into something nobody can reproduce.

Precision. Telegram publishes view counts on its public widget in short form — 8.12K, 3.7M — so any reading at or above 1,000 reaches us rounded to three significant figures, and only counts below 1,000 are exact. Averages and rates derived from them are shown to the same precision rather than to the unit: a figure like 3,701,250 would assert digits nobody measured.

Reaction counts are published per emoji and rounded the same way, so a total below 1,000 is exact and a larger one is a sum that may carry a rounded component from each emoji above 1,000. Because it is a sum, it does not look rounded — read a large reaction total as three significant figures per contributing emoji rather than as the figure it prints.

What this channel posts

Video runtime
7m 18s
Average length
3m 39s

Measured directly from 2 videos with a duration reading, out of the posts we hold for this channel — not this channel’s whole posting history, only the sample this register has actually read. An exact reading to the second, taken from the post itself rather than from Telegram’s own rounded chrome, so it carries no mark.

Reaction mix

97 reactions across 18 posts, in 6 distinct kinds. The most used accounts for 53.6% of them.

Every reaction kind recorded on the sample, most used first
ReactionCountShareShare, drawn
5253.6%
👍2929.9%
🔥55.15%
👌44.12%
🙏44.12%
33.09%

No sentiment is inferred, and none should be read in. This table is ordered by count and by nothing else. Emoji do not carry stable meaning across languages or communities — 🙏 is thanks in one channel and mourning in another — so we publish which ones were pressed and how often, and pass no judgement on what an audience meant by them.

Precision. Telegram publishes reaction counts per emoji and short-forms each one — 4.34K, 1.2M — so any single kind at or above 1,000 reaches us at three significant figures, and only counts below 1,000 are exact. The shares above are ratios of those figures and carry the same error. This is also why the total here can differ slightly from a reaction total printed elsewhere on the page: both are sums of the same rounded parts, taken over samples with different edges.

Coverage. Reactions were read on 18 of the 20 sampled posts in this sample. Summed by Telegram’s own count on each post — not by adding up the per-emoji breakdown above — those same posts carry 97reactions in total: the kind of figure the paragraph above means by “a reaction total printed elsewhere on the page”.

Measured over the 20 most recent posts we hold, published 26 May 2026 to 6 August 2026, using the newest reading held for each. Telegram Stars are excluded: they are a payment, not a reaction, and they have their own section.

Recent posts

6 Aug 2026, 07:33 UTC124 views8 reactionsread 7 August 2026
Forwarded from @triplyatavmesteVideo

Уважаемые члены Комиссии Минздрава! Через несколько дней вам предстоит решить судьбу препарата трастузумаб дерукстекан, а значит и судьбу тысяч женщин. Это женщины разных профессий, разного возраста и из разных регионов. Все они уже много лет борются с серьезным заболеванием – рак молочной железы. Но объединяет нас не только диагноз. Объединяет нас и то, что все мы очень хотим жить, растить детей и внуков и принос

👍8

30 Jul 2026, 08:36 UTC237 views10 reactionsread 7 August 2026
Photo

Спектакль «МОЙ ОБЫЧНЫЙ | РЕДКИЙ ДЕНЬ» • 1 августа в 18:00 • Московский драматический театр имени А.С. Пушкина Приглашаем на премьеру уникального спектакля, главные роли в котором исполняют дети с редкими генетическими заболеваниями. Показ пройдет в рамках съемок документального фильма «РЕДКИЕ», премьера которого запланирована на осень. Это трогательная история о взрослом, который однажды попадает в удивительный бум

10

23 Jul 2026, 17:00 UTC341 views2 reactionsread 7 August 2026
Photo

🧬 Нежелательные реакции и таргетная терапия муковисцидоза Таргетная терапия открыла новые возможности в лечении муковисцидоза, но вопросы, связанные с нежелательными реакциями, по-прежнему остаются одними из самых непростых. Как отличить временный побочный эффект от ситуации, требующей пересмотра лечения? Что важно учитывать при переходе между препаратами? И какие права есть у пациента при принятии таких решений? О

👌2

23 Jul 2026, 07:00 UTC340 views4 reactionsread 7 August 2026

❌ Минздрав и ФОМС не поддержали предложения ВСП, которые могли сократить ожидание жизненно важной терапии для тяжелобольных пациентов Комиссия Минздрава ежегодно включает новые препараты в перечень ЖНВЛП. Эти лекарства должны предоставляться пациентам бесплатно в рамках программы госгарантий. Но сроки обновления перечня ЖНВЛП и подготовки программы госгарантий не синхронизированы. В результате препарат уже признан

31

30 Jun 2026, 13:02 UTC384 views5 reactionsread 7 August 2026
Photo

Цифровая медицина начинается с доверия пациентов Искусственный интеллект уже пришёл в медицину — от анализа снимков до поддержки врачебных решений. Вопрос теперь не в том, «нужен ли нам ИИ», а в том, готовы ли люди ему доверять. 🤩 На III Всероссийской конференции «Этика научных исследований и глобальные социальные трансформации», проходившей при участии Комиссии РФ по делам ЮНЕСКО и Российского комитета программы Ю

5

30 Jun 2026, 07:57 UTC346 views3 reactionsread 7 August 2026
Video

«Пациентам обещают спасение там, где спасти невозможно» ⚡️Председатель совета учредителей НАЭЦЗ, медицинский адвокат, к.ю.н. Полина Габай выступила модератором острой дискуссии на Всероссийском форуме пациентов. Поводом для ее проведения стала серия обращений в Комитет Госдумы по охране здоровья — от адвокатского сообщества и семей пациентов, умерших в частных клиниках. Случаи оказались массовыми и поразительно похо

3

29 Jun 2026, 17:28 UTC230 views8 reactionsread 7 August 2026
Photo

Голос пациента должен быть частью решений, которые принимаются в здравоохранении Сопредседатель Всероссийского союза пациентов Юрий Жулёв принял участие во Всероссийском форуме пациентов, организованном ЛДПР. 👥Форум объединил пациентов, представителей общественных организаций, врачей, экспертов и органов власти для обсуждения вопросов доступности медицинской помощи, лекарственного обеспечения, кадрового дефицита и

6👌2

29 Jun 2026, 10:25 UTC250 views4 reactionsread 7 August 2026
Photo

📌Сразу несколько сложных и дорогостоящих медицинских процедур стали доступны россиянам бесплатно — их включили в базовую программу обязательного медицинского страхования (ОМС). Об этом в беседе с РИА Новости рассказал председатель Федерального фонда ОМС Илья Баланин. 🎤«В этом году мы сделали серьезный шаг вперед — в базовую программу ОМС включены 14 новых методов лечения», — сообщил он. Кроме того, добавил Баланин,

👍4

23 Jun 2026, 18:04 UTC337 viewsread 7 August 2026
Photo

💯Создать клиники мужского здоровья необходимо одновременно с разрушением стереотипов, что мужчины не болеют и что следить за своим здоровьем не обязательно, заявил сопредседатель Всероссийского союза пациентов Ян Власов. ❗️«Каждый третий случай семейного бесплодия в семье – это мужской организм. Сам факт наличия таких клиник сильно не изменит ситуацию с тем, чтобы мужчины сами шли в них. Но реклама, разъяснительная

22 Jun 2026, 14:46 UTC392 views4 reactionsread 7 August 2026
Photo

❗️Российские пациенты с гипертонией стали чаще жаловаться на длительное ожидание записи к кардиологу В 2026 году с такой проблемой столкнулись 63% опрошенных с таким диагнозом. Годом ранее на это жаловались только 52,8% респондентов, показало социологическое исследование «Барьеры эффективного контроля состояния здоровья при резистентной артериальной гипертензии — опыт пациентов», проведенное Всероссийским союзом пац

2🔥1🙏1

20 Jun 2026, 05:03 UTC341 views2 reactionsread 7 August 2026
Photo

☀️ Летние каникулы в разгаре, но вопросы, с которыми сталкиваются дети с орфанными заболеваниями и их родители, на паузу не встают. Сегодня в 10.00 по московскому времени в рамках проекта «Институт уполномоченного общественного эксперта по муковисцидозу» Станислав Кормилец из команды психологов «Второе дыхание» проведёт вебинар «Ребёнок среди детей: буллинг, одиночество и поддержка». ❓Почему дети становятся объект

2

Showing the 12 most recent of 20 posts we hold for @PatientsRu. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.

Citation-graph rank

Citation-graph rank — 250,068 of 1,160,990entries in the measured graph. A weighted position computed from the forward and mention edges below — republished posts weigh more than named mentions — and recomputed periodically, over the whole graph. Published only as this ordinal position, never as a score: a position is a fact, and a score printed beside one channel’s name would read as a verdict this register does not make. The two counts beneath stay separate for the same reason mentions are never summed with forwards anywhere else on this page — a named-by count costs nothing to manufacture. The top 100 by this measure, or how it is computed.

Forward network

Republished by

Channels on the register that have forwarded this channel's posts into their own feed.

Republishes

Channels on the register whose posts this channel has forwarded.

Built only from forwarded posts we have actually read, on both sides. Coverage is early and deliberately incomplete: a missing link means we have not read the post that would prove it, never that the relationship does not exist. Counts are distinct forwarded posts observed, so they only ever go up as we read more.

Mentions

Named by 1 registered channel — every channel on the register whose own posts have named this one, by its current username or any other username it currently holds, merged from two separately captured readings of the same fact so a namer caught by only one of them is not missed and a namer both caught is not counted twice. A username this channel has since dropped is not matched — that handle may belong to someone else now, and crediting today’s namer to yesterday’s owner would misattribute it.

Named by

Channels on the register whose posts name this channel's handle.

Names

Channels on the register whose handles appear in this channel's posts.

A mention is a weaker signal than a forward and is counted separately for that reason — naming a channel is not republishing it, and a handle in a post body is easy to place deliberately. The post counts beside each row below are distinct posts in which the handle appeared, from posts we have read on both sides — the “Named by N registered channels” figure above is a different count, of distinct NAMING CHANNELS rather than posts, and is not the sum of the rows under it.

Appears in Telegram’s recommendations for other channels

The reverse of the list above, and a different kind of signal. This does not require this channel to have ever been asked about directly — each row below is a channel we DID ask Telegram about, whose Telegram-generated list happened to include this one. A channel can appear here with an empty list above it, because being named by someone else’s query is independent of having been queried itself.

ЗдравКонтроль
@martynovevgueni · 220,632
Telegram ranks this channel #43 of 96 here — alongside 95 others — read 11 August 2026

This channel appears in 1 seed channel's Telegram-generated recommendation list in total. Each is Telegram’s list for THAT channel, not this one — see how this is measured.

Cite this entry

A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 8 August 2026 — this entry's latest reading, not the date you are reading this.

“Всероссийский союз пациентов (ВСП)” (@PatientsRu), 1,700 subscribers as measured 8 August 2026. Telegram Register, tgregister.com/channel/PatientsRu.

Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.