Channel
@dystrophy_society
On this record: Growth · Engagement · What this channel posts · Posts · Citations · Cite this entry
397subscribers
+0 since we began measuring on 6 August 2026
Risers and fallers across the register · movement among entries of Under 1,000.
| Telegram ID | -1001065268618 |
|---|---|
| Type | Channel |
| Username | @dystrophy_society |
| Description | تلگرام: t.me/dystrophy_society اینستاگرام: instagram.com/dystrophy_society سایت: mdairan.ir مدیران کانال: حامیان فعال و مستقل حقوق بیماران دیستروفی @Flmkhll فلامک خلیلی @YekNerd67 دانوش میرعلایی |
| Created | Between 1 May 2016 and 31 January 2017— estimated from Telegram’s id allocation, not measured. How this range is calculated. |
| First recorded | 6 August 2026 |
| Last confirmed live | 14 August 2026 |
| Measurements held | 2 |
| On Telegram | t.me/dystrophy_society |
| Measured (UTC) | Subscribers | Change |
|---|---|---|
| 6 Aug 2026, 19:51 | 397 | no change |
| 6 Aug 2026, 16:30 | 397 | first reading |
20 posts held, back to 6 July 2020 — the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 pageof Telegram’s post history, 20 posts per page.
Nothing published in the last 30 days. ERR and ER are rolling 30-day measures, so there is nothing to compute — we hold 20 posts for this entry, the most recent from 4 June 2026. An engagement rate over an empty window would be a number about nothing.
Lifetime counters from Telegram’s own channel header, read 6 August 2026 — not the date at the top of this page, which is when the subscriber count was last read. Below Telegram’s rounding threshold, so these counts are exact.
🛑⚠️دوستان و همراهان عزیز کانال جامعه تحلیل عضلانی متاسفانه تلگرام خانم خلیلی هک شده و گروه ها و کانال های تحت مدیریت ایشون از جمله این کانال سرقت شده و از کنترل ما خارج هستند لطفا بلافاصله بعد از دیدن این پیام وارد کانال و گروه جدید شده و از این کانال و گروه قبلی خارج بشید تا مورد سو استفاده قرار نگیرید کانال جدید @dystrophysociety گروه جدید https://t.me/+SQ0mgRlIcF82NWVk
Signed Danoosh
Channel name was changed to «Channel 2016»
بلند کردن بیمار از روی زمین #توانبخشی
Channel 2016 pinned «https://www.karzar.net/264531»
https://www.karzar.net/264531
https://t.me/SMA_Iran
✅ خبر: یک گام مثبت در درمان دیستروفی عضلانی Limb-Girdle! شرکت AskBio اولین شرکتکننده در گروه دوم آزمایش بالینی فاز 1/2 ژندرمانی AB-1003 برای دیستروفی عضلانی Limb-Girdle نوع 2I/R9 را دوزبندی کرد. این آزمایش LION-CS101 با هدف ارزیابی ایمنی و تحملپذیری AB-1003 در بزرگسالان مبتلا به LGMD2I/R9 انجام میشود و پس از توصیه مثبت هیئت نظارت بر دادهها و ایمنی، ثبتنام در گروه دوم در چندین مرکز در ایالات متحده ادامه دارد. …
شرکت Avidity Biosciences در حال توسعه AOC 1001 (delpacibart etedesiran) بهعنوان یک درمان تجربی برای دیستروفی میوتونیک نوع 1 (DM1) است. این شرکت قصد دارد در سال 2025 اولین درخواست مجوز بیولوژیکی (BLA) خود را برای AOC 1001 ارائه دهد. این تصمیم پس از نتایج مثبت از آزمایشهای بالینی اخیر اتخاذ شده است. پیشرفتهای اخیر: - دادههای مثبت از مطالعه MARINA-OLE: در مارس 2024، دادههای بلندمدت از مطالعه فاز 2 MARINA-OLE نشان…
اطلاعیه کلاس رایگان جامعه بدون تبعیض توجه: این پست صرفا جهت اطلاع رسانی است و محتویات دوره و برگزار کننده آن ارتباطی به این کانال ندارند ثبت نام و اطلاعات بیشتر: dmcenter.ge/fa
این کلیپ رو ببینید و برای همه بفرستید تا بیماران دیستروفی DMD بتونند خدمات خیریه ای دریافت کنند. این کلیپ باید دست به دست بشه تا به تک تک روستایی های ایران برسه و گوشه ای از مشکلاتشون حل بشه. دمتون گرم. اشتراک گذاشتن هزینه ای برای جیب شما نداره ولی شاید بتونه برای خیلی ها بسیار مفید باشه. بیاید در این فعالیت اجتماعی شریک باشیم🌹 09396954068 یا dmdiran98@ مددکاری خیریه جهت ثبت نام و سوالات شما (تماس و پیام در واتس اپ -…
https://www.instagram.com/reel/C5taqihIJlG/?igsh=MThtNXRmaWIybm42YQ==
https://www.msn.com/en-us/health/other/fda-approves-cure-for-sickle-cell-disease-the-first-treatment-to-use-crispr/ar-AA1ld7zF?PC=EMMX01
Showing the 12 most recent of 20 posts we hold for @dystrophy_society. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked ≈ was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.
Citation-graph rank — 534,452 of 1,350,102entries in the measured graph. A weighted position computed from the forward and mention edges below — republished posts weigh more than named mentions — and recomputed periodically, over the whole graph. Published only as this ordinal position, never as a score: a position is a fact, and a score printed beside one channel’s name would read as a verdict this register does not make. The two counts beneath stay separate for the same reason mentions are never summed with forwards anywhere else on this page — a named-by count costs nothing to manufacture. The top 100 by this measure, or how it is computed.
Republished by
Channels on the register that have forwarded this channel's posts into their own feed.
Republishes
Channels on the register whose posts this channel has forwarded.
Built only from forwarded posts we have actually read, on both sides. Coverage is early and deliberately incomplete: a missing link means we have not read the post that would prove it, never that the relationship does not exist. Counts are distinct forwarded posts observed, so they only ever go up as we read more.
Names
Channels on the register whose handles appear in this channel's posts.
A mention is a weaker signal than a forward and is counted separately for that reason — naming a channel is not republishing it, and a handle in a post body is easy to place deliberately. The post counts beside each row below are distinct posts in which the handle appeared, from posts we have read on both sides — the “Named by N registered channels” figure above is a different count, of distinct NAMING CHANNELS rather than posts, and is not the sum of the rows under it.
A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 6 August 2026 — this entry's latest reading, not the date you are reading this.
“Channel 2016” (@dystrophy_society), 397 subscribers as measured 6 August 2026. Telegram Register, tgregister.com/channel/dystrophy_society.
Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.