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Channel

مرض انحلال البشرة الفقاعي

@EpidermolysisBullosa

On this record: Topic · Growth · Engagement · What this channel posts · Posts · Cite this entry

57subscribers

+1 since we began measuring on 6 August 2026

Risers and fallers across the register · movement among entries of Under 1,000.

Register entry

Telegram ID-1001108975757
TypeChannel
Username@EpidermolysisBullosa
CreatedBetween 1 February 2017 and 8 November 2017 — estimated from Telegram’s id allocation, not measured. How this range is calculated.
First recorded10 August 2026
Last confirmed live10 October 2026
Measurements held3
Confirmed unchanged5 times, most recently 10 October 2026
On Telegramt.me/EpidermolysisBullosa

Topic

Health & wellness — a classification, not a measurement. An on-box language model (Qwen3.6-35B-A3B-FP8, prompt version 1) read this channel’s own recent posts on 29 September 2026 and assigned it the closest of 31 fixed categories, at 91% confidence. This is a model’s judgement about what the channel is likely to be about, not a fact this register measured the way a subscriber count or a view count is measured — it can be revised on a later pass, and it carries no weight anywhere else on this page. How this classification works, and why it has no browse page of its own yet.

Growth

565756.56 August 2026 — 56 subscribers10 August 2026 — 56 subscribers30 August 2026 — 57 subscribers6 August 202630 August 2026
3 measurements spanning 24 days, net +1. Dots are measurements; the straight line between them is drawn to join them, not to claim we know the path taken in between — snapshots are recorded only when a count changes, so gaps mean “no change observed”, never “interpolated”. The vertical axis spans 56–57 and does not start at zero.
Measurement log — every subscribers count we have recorded
Measured (UTC)SubscribersChange
30 Aug 2026, 04:0257+1
10 Aug 2026, 07:1656no change
6 Aug 2026, 01:5956first reading

Engagement

19 posts held, back to 8 November 2017 — the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 page of Telegram’s post history, 20 posts per page.

Nothing published in the last 30 days. ERR and ER are rolling 30-day measures, so there is nothing to compute — we hold 19 posts for this entry, the most recent from 8 April 2026. An engagement rate over an empty window would be a number about nothing.

What this channel posts

Video runtime
2m 20s
Average length
2m 20s

Measured directly from 1 video with a duration reading, out of the posts we hold for this channel — not this channel’s whole posting history, only the sample this register has actually read. An exact reading to the second, taken from the post itself rather than from Telegram’s own rounded chrome, so it carries no ≈ mark.

Recent posts

27 Dec 2022, 18:29 UTC669 viewsread 10 August 2026

الروس بصدد تطوير علاج لـ 'مرض الفراشة' الوراثي النادر' | MENAFN.COM https://menafn.com/arabic/1105340489/%D8%A7%D9%84%D8%B1%D9%88%D8%B3-%D8%A8%D8%B5%D8%AF%D8%AF-%D8%AA%D8%B7%D9%88%D9%8A%D8%B1-%D8%B9%D9%84%D8%A7%D8%AC-%D9%84%D9%80-%D9%85%D8%B1%D8%B6-%D8%A7%D9%84%D9%81%D8%B1%D8%A7%D8%B4%D8%A9-%D8%A7%D9%84%D9%88%D8%B1%D8%A7%D8%AB%D9%8A-%D8%A7%D9%84%D9%86%D8%A7%D8%AF%D8%B1

27 Dec 2022, 18:26 UTC573 viewsread 10 August 2026

في طور الاختبار.. علاج جيني لمرض انحلال البشرة الفقاعي النادر | التلفزيون العربي https://www.alaraby.com/news/%D9%81%D9%8A-%D8%B7%D9%88%D8%B1-%D8%A7%D9%84%D8%A7%D8%AE%D8%AA%D8%A8%D8%A7%D8%B1-%D8%B9%D9%84%D8%A7%D8%AC-%D8%AC%D9%8A%D9%86%D9%8A-%D9%84%D9%85%D8%B1%D8%B6-%D8%A7%D9%86%D8%AD%D9%84%D8%A7%D9%84-%D8%A7%D9%84%D8%A8%D8%B4%D8%B1%D8%A9-%D8%A7%D9%84%D9%81%D9%82%D8%A7%D8%B9%D9%8A-%D8%A7%D9%84%D9%86%D8%A7%D8%AF%D8%B1

27 Jul 2022, 06:26 UTC603 viewsread 10 August 2026

الدكتور الغزال يُعلن التوصّل لعلاج فعّال لهذا المرض https://www.tuniscope.com/ar/article/336135/arabe/sante/hatem-162008

22 Apr 2019, 07:58 UTC≈1,160 viewsread 10 August 2026

زرع جلد لطفل مصاب بمرض خطير - البيان https://www.albayan.ae/health/disease-cure/2019-04-21-1.3540366

15 Mar 2019, 21:46 UTC915 viewsread 10 August 2026

بروتين TSP1 مسؤول عن الإصابة بـ"متلازمة الفراشة" 0 نشر القاهرة - بواسطة ايمان عبدالله - طريقة جديدة لتقليل مخاطر متلازمة الفراشة - أرشيفية نجح العلماء في تحديد الكيفية التي تنشأ بها الأنسجة الليفية في حالة الإصابة بالمرض الجلدي المعروف بـ"متلازمة الفراشة"، وهو اكتشاف سوف يساعد في إيجاد العلاج الفعال. و"متلازمة الفراشة" هي مرض انحلال البشرة الفقاعى ويُعرف بأنه مجموعة من الاضطرابات الوراثية تصيب النسيج الضام وتس…

5 Dec 2017, 13:04 UTC855 viewsread 10 August 2026

قال ممثلون من جامعة بوخوم في ألمانيا إن أطباء ألمانا نجحوا في استيلاد وإنتاج بشرة معدلة وراثيا وزراعتها لتحل محل بشرة صبي مصاب بمرض جيني في عملية لإنقاذ حياته وصفوها بأنها الأولى من نوعها. ويصف تقرير بحثي نشر في دورية نيتشر للطب الحيوي كيف استخدم الأطباء هذا الإجراء التجريبي لاستيلاد خلايا جلد مهندسة وراثيا ثم تطعيم جسم الصبي بالجلد الجديد في المختبر. ويعاني الطفل حسن البالغ من العمر سبع سنوات من مرض وراثي يعرف باسم …

Showing the 12 most recent of 19 posts we hold for @EpidermolysisBullosa. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked ≈ was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.

Cite this entry

A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 30 August 2026 — this entry's latest reading, not the date you are reading this.

“مرض انحلال البشرة الفقاعي” (@EpidermolysisBullosa), 57 subscribers as measured 30 August 2026. Telegram Register, tgregister.com/channel/EpidermolysisBullosa.

Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.