https://forms.gle/inMJ2HLxewkDSsny6

Channel
مرض انحلال البشرة الفقاعي
@EpidermolysisBullosa
On this record: Topic · Growth · Engagement · What this channel posts · Posts · Cite this entry
57subscribers
+1 since we began measuring on 6 August 2026
Risers and fallers across the register · movement among entries of Under 1,000.
Register entry
| Telegram ID | -1001108975757 |
|---|---|
| Type | Channel |
| Username | @EpidermolysisBullosa |
| Created | Between 1 February 2017 and 8 November 2017 — estimated from Telegram’s id allocation, not measured. How this range is calculated. |
| First recorded | 10 August 2026 |
| Last confirmed live | 10 October 2026 |
| Measurements held | 3 |
| Confirmed unchanged | 5 times, most recently 10 October 2026 |
| On Telegram | t.me/EpidermolysisBullosa |
Topic
Health & wellness — a classification, not a measurement. An on-box language model (Qwen3.6-35B-A3B-FP8, prompt version 1) read this channel’s own recent posts on 29 September 2026 and assigned it the closest of 31 fixed categories, at 91% confidence. This is a model’s judgement about what the channel is likely to be about, not a fact this register measured the way a subscriber count or a view count is measured — it can be revised on a later pass, and it carries no weight anywhere else on this page. How this classification works, and why it has no browse page of its own yet.
Growth
| Measured (UTC) | Subscribers | Change |
|---|---|---|
| 30 Aug 2026, 04:02 | 57 | +1 |
| 10 Aug 2026, 07:16 | 56 | no change |
| 6 Aug 2026, 01:59 | 56 | first reading |
Engagement
19 posts held, back to 8 November 2017 — the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 page of Telegram’s post history, 20 posts per page.
Nothing published in the last 30 days. ERR and ER are rolling 30-day measures, so there is nothing to compute — we hold 19 posts for this entry, the most recent from 8 April 2026. An engagement rate over an empty window would be a number about nothing.
What this channel posts
- Video runtime
- 2m 20s
- Average length
- 2m 20s
Measured directly from 1 video with a duration reading, out of the posts we hold for this channel — not this channel’s whole posting history, only the sample this register has actually read. An exact reading to the second, taken from the post itself rather than from Telegram’s own rounded chrome, so it carries no ≈ mark.
Recent posts
https://forms.gle/8nqDT77eaVqUWwj17
الروس بصدد تطوير علاج لـ 'مرض الفراشة' الوراثي النادر' | MENAFN.COM https://menafn.com/arabic/1105340489/%D8%A7%D9%84%D8%B1%D9%88%D8%B3-%D8%A8%D8%B5%D8%AF%D8%AF-%D8%AA%D8%B7%D9%88%D9%8A%D8%B1-%D8%B9%D9%84%D8%A7%D8%AC-%D9%84%D9%80-%D9%85%D8%B1%D8%B6-%D8%A7%D9%84%D9%81%D8%B1%D8%A7%D8%B4%D8%A9-%D8%A7%D9%84%D9%88%D8%B1%D8%A7%D8%AB%D9%8A-%D8%A7%D9%84%D9%86%D8%A7%D8%AF%D8%B1
في طور الاختبار.. علاج جيني لمرض انحلال البشرة الفقاعي النادر | التلفزيون العربي https://www.alaraby.com/news/%D9%81%D9%8A-%D8%B7%D9%88%D8%B1-%D8%A7%D9%84%D8%A7%D8%AE%D8%AA%D8%A8%D8%A7%D8%B1-%D8%B9%D9%84%D8%A7%D8%AC-%D8%AC%D9%8A%D9%86%D9%8A-%D9%84%D9%85%D8%B1%D8%B6-%D8%A7%D9%86%D8%AD%D9%84%D8%A7%D9%84-%D8%A7%D9%84%D8%A8%D8%B4%D8%B1%D8%A9-%D8%A7%D9%84%D9%81%D9%82%D8%A7%D8%B9%D9%8A-%D8%A7%D9%84%D9%86%D8%A7%D8%AF%D8%B1
الدكتور الغزال يُعلن التوصّل لعلاج فعّال لهذا المرض https://www.tuniscope.com/ar/article/336135/arabe/sante/hatem-162008
Photo, posted without a caption
زرع جلد لطفل مصاب بمرض خطير - البيان https://www.albayan.ae/health/disease-cure/2019-04-21-1.3540366
بروتين TSP1 مسؤول عن الإصابة بـ"متلازمة الفراشة" 0 نشر القاهرة - بواسطة ايمان عبدالله - طريقة جديدة لتقليل مخاطر متلازمة الفراشة - أرشيفية نجح العلماء في تحديد الكيفية التي تنشأ بها الأنسجة الليفية في حالة الإصابة بالمرض الجلدي المعروف بـ"متلازمة الفراشة"، وهو اكتشاف سوف يساعد في إيجاد العلاج الفعال. و"متلازمة الفراشة" هي مرض انحلال البشرة الفقاعى ويُعرف بأنه مجموعة من الاضطرابات الوراثية تصيب النسيج الضام وتس…
💔🌹
انشروا القناة لوجه الله
Video, posted without a caption
قال ممثلون من جامعة بوخوم في ألمانيا إن أطباء ألمانا نجحوا في استيلاد وإنتاج بشرة معدلة وراثيا وزراعتها لتحل محل بشرة صبي مصاب بمرض جيني في عملية لإنقاذ حياته وصفوها بأنها الأولى من نوعها. ويصف تقرير بحثي نشر في دورية نيتشر للطب الحيوي كيف استخدم الأطباء هذا الإجراء التجريبي لاستيلاد خلايا جلد مهندسة وراثيا ثم تطعيم جسم الصبي بالجلد الجديد في المختبر. ويعاني الطفل حسن البالغ من العمر سبع سنوات من مرض وراثي يعرف باسم …
Showing the 12 most recent of 19 posts we hold for @EpidermolysisBullosa. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked ≈ was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.
Cite this entry
A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 30 August 2026 — this entry's latest reading, not the date you are reading this.
“مرض انحلال البشرة الفقاعي” (@EpidermolysisBullosa), 57 subscribers as measured 30 August 2026. Telegram Register, tgregister.com/channel/EpidermolysisBullosa.
Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.