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Telegram profile photo for صدای نوروفیبروماتوز ( کانال رسمی انجمن نوروفیبروماتوز ایران)

Channel

صدای نوروفیبروماتوز ( کانال رسمی انجمن نوروفیبروماتوز ایران)

@yazdanimazdak09379108738

On this record: Topic · Growth · Engagement · Reactions · Posts · Citations · Telegram's recommendations · Cite this entry

1,021subscribers

+35 since we began measuring on 6 August 2026

Risers and fallers across the register · movement among entries of 1,000–3,162.

Register entry

Telegram ID-1001050175993
TypeChannel
Username@yazdanimazdak09379108738
CreatedBetween 1 April 2016 and 31 January 2017 — estimated from Telegram’s id allocation, not measured. How this range is calculated.
First recorded6 August 2026
Last confirmed live18 September 2026
Measurements held11
Confirmed unchanged1 time, most recently 18 September 2026
On Telegramt.me/yazdanimazdak09379108738

Topic

Health & wellness — a classification, not a measurement. An on-box language model (Qwen3.6-35B-A3B-FP8, prompt version 1) read this channel’s own recent posts on 19 September 2026 and assigned it the closest of 31 fixed categories, at 99% confidence. This is a model’s judgement about what the channel is likely to be about, not a fact this register measured the way a subscriber count or a view count is measured — it can be revised on a later pass, and it carries no weight anywhere else on this page. How this classification works, and why it has no browse page of its own yet.

Growth

9861,0211,003.56 August 2026 — 986 subscribers6 August 2026 — 986 subscribers7 August 2026 — 987 subscribers13 August 2026 — 994 subscribers19 August 2026 — 1,001 subscribers23 August 2026 — 1,004 subscribers29 August 2026 — 1,005 subscribers1 September 2026 — 1,010 subscribers5 September 2026 — 1,012 subscribers10 September 2026 — 1,020 subscribers18 September 2026 — 1,021 subscribers6 August 202618 September 2026
11 measurements spanning 43 days, net +35. Dots are measurements; the straight line between them is drawn to join them, not to claim we know the path taken in between — snapshots are recorded only when a count changes, so gaps mean “no change observed”, never “interpolated”. The vertical axis spans 981–1,026 and does not start at zero.
Measurement log — every subscribers count we have recorded
Measured (UTC)SubscribersChange
18 Sept 2026, 13:151,021+1
10 Sept 2026, 13:421,020+8
5 Sept 2026, 03:191,012+2
1 Sept 2026, 08:371,010+5
29 Aug 2026, 09:561,005+1
23 Aug 2026, 02:021,004+3
19 Aug 2026, 15:141,001+7
13 Aug 2026, 09:56994+7
7 Aug 2026, 00:10987+1
6 Aug 2026, 17:17986no change
6 Aug 2026, 16:54986first reading

Engagement

20 posts held, back to 27 July 2026 — the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 page of Telegram’s post history, 20 posts per page.

Nothing published in the last 30 days. ERR and ER are rolling 30-day measures, so there is nothing to compute — we hold 20 posts for this entry, the most recent from 3 August 2026. An engagement rate over an empty window would be a number about nothing.

Reaction mix

128 reactions across 18 posts, in 6 distinct kinds. The most used accounts for 55.5% of them.

Every reaction kind recorded on the sample, most used first
ReactionCountShareShare, drawn
❤7155.5%
👍4434.4%
🙏53.91%
🔥32.34%
😍32.34%
👌21.56%

No sentiment is inferred, and none should be read in. This table is ordered by count and by nothing else. Emoji do not carry stable meaning across languages or communities — 🙏 is thanks in one channel and mourning in another — so we publish which ones were pressed and how often, and pass no judgement on what an audience meant by them.

Precision. Telegram publishes reaction counts per emoji and short-forms each one — 4.34K, 1.2M — so any single kind at or above 1,000 reaches us at three significant figures, and only counts below 1,000 are exact. The shares above are ratios of those figures and carry the same error. This is also why the total here can differ slightly from a reaction total printed elsewhere on the page: both are sums of the same rounded parts, taken over samples with different edges.

Coverage. Reactions were read on 18 of the 20 sampled posts in this sample. Summed by Telegram’s own count on each post — not by adding up the per-emoji breakdown above — those same posts carry 128 reactions in total: the kind of figure the paragraph above means by “a reaction total printed elsewhere on the page”.

Measured over the 20 most recent posts we hold, published 27 July 2026 to 3 August 2026, using the newest reading held for each. Telegram Stars are excluded: they are a payment, not a reaction, and they have their own section.

Recent posts

3 Aug 2026, 19:29 UTC244 views4 reactionsread 6 August 2026

سردرد در نوروفیبروماتوز نوع دو در نوع دوم بیماری،سردرد شایع تر هست چون تومورهای مغزی بیشتر هستن سردرد ناشی از شوانوماهای عصب شنوایی، مننژیوم‌ها،اپاندیموماهای نخاعی و مغزی این تومورها میتونن باعث فشار روی ساختارهای مغز بشوند تومورها باعث میشن که مغز بیشتر در معرض افزایش فشار داخل جمجمه قرار بگیره و حتی ممکنه باعث هیدروسفالی بشوند که باعث فشار پشت چشم هست سردردهای عصبی مانند نوع یک، در نوع دو هم وجود دارن. شوانوماها…

❤4

Signed حسن یزدانی ( مزدک)

3 Aug 2026, 19:28 UTC238 viewsread 6 August 2026
Photo

https://www.instagram.com/reel/DblAfaDM8PP/?igsh=MW9ieHEwaGVxbXg3OA==

Signed حسن یزدانی ( مزدک)

2 Aug 2026, 13:50 UTC288 views7 reactionsread 6 August 2026

سردرد در نوروفیبروماتوز نوع یک بغیر از سردردهایی که هر شخص مبتلا یا غیر مبتلا ممکنه بهشون دچار بشه باید بدونیم که سردرد معمولا یک علامت مهم محسوب میشه که باید بهش توجه بشه در نوع یک بیماری سردرد ناشی از گلیوم عصب بینایی میتونه باعث:درد چشم،تاری دید،دوبینی و حساسیت به نور بشه. تومورهای نادر مغزی ممکنه باعث فشار داخل جمجمه،سردردهای صبحگاهی،تهوع،استفراغ،تاری دید و بدتر شدن سردرد با خم شدن بشه توده پلکسی فرم نزدیک ب…

❤7

Signed حسن یزدانی ( مزدک)

2 Aug 2026, 12:12 UTC259 views3 reactionsread 6 August 2026

لیست مطالب مندرج در کانال ( قسمت دوم ) تشدید عوارض بیماری در دوران بارداری https://t.me/yazdanimazdak09379108738/2613 تشدید عوارض بیماری در دوران بلوغ https://t.me/yazdanimazdak09379108738/2614 ازمایش ژنتیک قسمت اول https://t.me/yazdanimazdak09379108738/2615 ازمایش ژنتیک قسمت دوم https://t.me/yazdanimazdak09379108738/2616 تاثیر داروهای هورمونی https://t.me/yazdanimazdak09379108738/2617 روزه و بیماران …

❤3

Signed حسن یزدانی ( مزدک)

2 Aug 2026, 12:12 UTC249 views3 reactionsread 6 August 2026

لیست مطالب مندرج در کانال تلگرام ( قسمت اول ) چطوری میتونم عضو انجمن بشم https://t.me/yazdanimazdak09379108738/2686 مزایای عضویت در انجمن https://t.me/yazdanimazdak09379108738/2460 خدمات ثبت نام در سامانه بیماران نادر https://t.me/yazdanimazdak09379108738/2461 چطوری متوجه بشم ثبت نام تکمیل شده https://t.me/yazdanimazdak09379108738/2182 چطوری بیمه خودم رو نشاندار کنم چه مزیتی داره https://t.me/yazdanimazdak…

❤3

Signed حسن یزدانی ( مزدک)

2 Aug 2026, 09:42 UTC277 views3 reactionsread 6 August 2026

دوستی نوشته: سلام وقتتون بخیر عذر خواهم مزاحمتون شدم . من چند روز قبل برای نشاندار شدن با اون نامه که از بنیاد گرفتم رفتم اسناد پزشکی استان . زدن سیستم و گفتن شما نشاندار شدید برای تمدید گفتم . که ۶ماهه هست گفتن نه برا من رو گفتن تا سال ۴۰۷ تمدید داره که فرم هم بهم دادن براشون نوشتم: اون قسمتی که در پیام نوشتیم شش ماه اعتبار داره مربوط به اون معرفی نامه ای هست که از بنیاد میگیرید کلا هر گواهی یا معرفی نامه ای …

❤3

Signed حسن یزدانی ( مزدک)

2 Aug 2026, 01:13 UTC193 views6 reactionsread 6 August 2026
Forwarded from @livingwithNF

#سوال_شما بیماری نورفیبروماتوز جز بیماری های #صعب_العلاج هست؟ مرجع این دسته بندی در ایران کجاست؟ وزارت بهداشت؟؟ 😐💻✨✨✨✨✨✨✨✨✨✨✨✨ ✅ #پاسخ از مدیر عامل انجمن آقای حسن یزدانی بعد ثبت سند ملی بیماران نادر با پیگیری بنیاد بیماریهای نادر طبق تعریف نوع بیماری و الگوی ابتلای بیماری و میزان ابتلا و برسی روشهای درمانی بیماری نوروفیبروماتوز جزو بیماریهای #صعب_العلاج شناخته شده و به تمام ارگانها اعلام شده از وزارت بهدا…

❤3👍3

Signed [email protected] 🩵 nmj.goums.ac.ir 🩵🎉🌎🤍

2 Aug 2026, 01:08 UTC191 viewsread 6 August 2026
Forwarded from @livingwithNF

ده مرداد است 1️⃣0️⃣ و به رسم همیشگی ده هزار تومان برای بیماران کمک می کنیم ✨🌷✨🌷✨🌷✨🌷➖❤️➖➖➖❤️ 5022-2910-0801-1635

Signed [email protected] 🩵 nmj.goums.ac.ir 🩵🎉🌎🤍

31 Jul 2026, 10:06 UTC412 views7 reactionsread 6 August 2026

دوستی نوشته: توی کانال سرچ کردم و اسم چندتا متخصص رو پیدا کردم شمارشون یا قطع بود یا کلا اشتباه بود میشه توضیح بدید چرا شماره ها اشتباهه؟ البته یکیشون درست بود و برای دخترم ام ار ای تجویز کرد گفت فعلا عارضه داخلی نداره و مثل حرف خودتون گفت که سالی یکبار باید مراجعه کنم اونم رفتم مرکز پارسیان رایگان برام انجام دادن براشون نوشتم: در دوران دو جنگ اخیر خیلی از خطوط تلفن در شهرهای مختلف قطع شده برخی ساختمانها تخریب…

👍5❤2

Signed حسن یزدانی ( مزدک)

30 Jul 2026, 08:04 UTC411 views3 reactionsread 6 August 2026

#یادآوری انجام #کار_نیکو 🔵 در روز پنجشنبه 5022-2910-0801-1635 ❤️

👍2❤1

Signed [email protected] 🩵 nmj.goums.ac.ir 🩵🎉🌎🤍

30 Jul 2026, 08:03 UTC306 views1 reactionsread 6 August 2026
Forwarded from @DrJouybari

#یادآوری انجام #کار_نیکو 🔵 در روز پنجشنبه 5022-2910-0801-1635 🥥🥥🥥🥥🥥🥥 🥥🥥🥥🥥🥥🥥 🥥🥥🥥🥥🥥🥥 🥥🥥🥥🥥🥥🥥

❤1

Signed [email protected] 🩵 nmj.goums.ac.ir 🩵🎉🌎🤍

Showing the 12 most recent of 20 posts we hold for @yazdanimazdak09379108738. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked ≈ was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.

Forward network

Built only from forwarded posts we have actually read, on both sides. Coverage is early and deliberately incomplete: a missing link means we have not read the post that would prove it, never that the relationship does not exist. Counts are distinct forwarded posts observed, so they only ever go up as we read more.

Appears in Telegram’s recommendations for other channels

The reverse of the list above, and a different kind of signal. This does not require this channel to have ever been asked about directly — each row below is a channel we DID ask Telegram about, whose Telegram-generated list happened to include this one. A channel can appear here with an empty list above it, because being named by someone else’s query is independent of having been queried itself.

آكادمي فاطمه شيخلو🙋🏻‍♀️
@sheikhlouu · 25,223
Telegram ranks this channel #33 of 57 here — alongside 56 others — read 15 September 2026

This channel appears in 1 seed channel's Telegram-generated recommendation list in total. Each is Telegram’s list for THAT channel, not this one — see how this is measured.

Cite this entry

A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 18 September 2026 — this entry's latest reading, not the date you are reading this.

“صدای نوروفیبروماتوز ( کانال رسمی انجمن نوروفیبروماتوز ایران)” (@yazdanimazdak09379108738), 1,021 subscribers as measured 18 September 2026. Telegram Register, tgregister.com/channel/yazdanimazdak09379108738.

Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.