Информация для учителя школы про ученика с МВ. Что бы вы добавили? https://m.dzen.ru/a/ao9L4PU8QW_RmJie
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Channel
@marinaryPROmucoviscidosi
On this record: Topic · Growth · Engagement · Reactions · Posts · Citations · Telegram's recommendations · Cite this entry
1,325subscribers
-3 since we began measuring on 4 September 2026
Risers and fallers across the register · movement among entries of 1,000–3,162.
| Telegram ID | -1001722246137 |
|---|---|
| Type | Channel |
| Username | @marinaryPROmucoviscidosi |
| Created | Between 1 December 2021 and 30 April 2023 — estimated from Telegram’s id allocation, not measured. How this range is calculated. |
| First recorded | 4 September 2026 |
| Last confirmed live | 18 September 2026 |
| Measurements held | 4 |
| Confirmed unchanged | 1 time, most recently 18 September 2026 |
| On Telegram | t.me/marinaryPROmucoviscidosi |
Health & wellness — a classification, not a measurement. An on-box language model (Qwen3.6-35B-A3B-FP8, prompt version 1) read this channel’s own recent posts on 18 September 2026 and assigned it the closest of 31 fixed categories, at 99% confidence. This is a model’s judgement about what the channel is likely to be about, not a fact this register measured the way a subscriber count or a view count is measured — it can be revised on a later pass, and it carries no weight anywhere else on this page. How this classification works, and why it has no browse page of its own yet.
| Measured (UTC) | Subscribers | Change |
|---|---|---|
| 18 Sept 2026, 21:19 | 1,325 | -1 |
| 14 Sept 2026, 12:59 | 1,326 | -1 |
| 5 Sept 2026, 23:18 | 1,327 | -1 |
| 4 Sept 2026, 18:22 | 1,328 | first reading |
20 posts held, back to 12 April 2026 — the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 page of Telegram’s post history, 20 posts per page.
ERR is average views per post over the last 30 days divided by subscribers, the definition TGStat uses, so this figure is comparable with the one you will see elsewhere. It falls structurally as a channel grows: a high ERR on a small channel and a low one on a large channel describe reach mathematics, not quality. We publish the figure and the sample it came from and pass no verdict on it.
ER is defined industry-wide as (forwards + reactions + comments) ÷ views — note the denominator is views, not subscribers. Telegram’s public web preview carries views and reactions but not forward or comment counts, so the reaction rate above is the reactions term only and is therefore a floor: the true ER for this channel is higher by an amount we have not measured and will not estimate.
| Window | Rolling 30 days · latest post in window 26 August 2026 |
|---|---|
| Posts held | 20 (12 April 2026 – 26 August 2026) |
| Views total | 521 |
| Reactions total | 18 |
| Forwards / comments | not exposed by the public surface — not measured, not estimated |
| Readings taken | 4 Sept 2026, 18:22 UTC |
Views are a single reading per post, taken at the time above. A post published in the last day or two is still accumulating views, which pulls the 30-day average down slightly. That is a property of the standard definition rather than a fault in it, so we keep the definition rather than “correcting” the number into something nobody can reproduce.
Precision. Telegram publishes view counts on its public widget in short form — 8.12K, 3.7M — so any reading at or above 1,000 reaches us rounded to three significant figures, and only counts below 1,000 are exact. Averages and rates derived from them are shown to the same precision rather than to the unit: a figure like 3,701,250 would assert digits nobody measured.
Reaction counts are published per emoji and rounded the same way, so a total below 1,000 is exact and a larger one is a sum that may carry a rounded component from each emoji above 1,000. Because it is a sum, it does not look rounded — read a large reaction total as three significant figures per contributing emoji rather than as the figure it prints.
290 reactions across 16 posts, in 11 distinct kinds. The most used accounts for 63.4% of them.
| Reaction | Count | Share | Share, drawn |
|---|---|---|---|
| ❤ | 184 | 63.4% | |
| 🔥 | 42 | 14.5% | |
| 👍 | 36 | 12.4% | |
| 😢 | 12 | 4.14% | |
| 😁 | 5 | 1.72% | |
| ⚡ | 3 | 1.03% | |
| ❤🔥 | 2 | 0.69% | |
| 🍾 | 2 | 0.69% | |
| 🥰 | 2 | 0.69% | |
| 👎 | 1 | 0.345% | |
| 🤯 | 1 | 0.345% |
No sentiment is inferred, and none should be read in. This table is ordered by count and by nothing else. Emoji do not carry stable meaning across languages or communities — 🙏 is thanks in one channel and mourning in another — so we publish which ones were pressed and how often, and pass no judgement on what an audience meant by them.
Precision. Telegram publishes reaction counts per emoji and short-forms each one — 4.34K, 1.2M — so any single kind at or above 1,000 reaches us at three significant figures, and only counts below 1,000 are exact. The shares above are ratios of those figures and carry the same error. This is also why the total here can differ slightly from a reaction total printed elsewhere on the page: both are sums of the same rounded parts, taken over samples with different edges.
Coverage. Reactions were read on 16 of the 20 sampled posts in this sample. Summed by Telegram’s own count on each post — not by adding up the per-emoji breakdown above — those same posts carry 290 reactions in total: the kind of figure the paragraph above means by “a reaction total printed elsewhere on the page”.
Measured over the 20 most recent posts we hold, published 12 April 2026 to 26 August 2026, using the newest reading held for each. Telegram Stars are excluded: they are a payment, not a reaction, and they have their own section.
Информация для учителя школы про ученика с МВ. Что бы вы добавили? https://m.dzen.ru/a/ao9L4PU8QW_RmJie
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Поздравляем Грузию с тем, что у них теперь есть #Trikafta и #муковисцидозНЕприговор Я не знаю условий выдачи и что написано на картинке, но у кого есть гражданство - узнавайте всё
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Комиссия Минздрава единогласно выступила ПРОТИВ трилексы!!! Слава Богу! Люди с диагнозом #муковисцидоз достойны жить, получая лекарства с доказанной эффективностью и безопасностью #ТрикафтаДаритЖизнь
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Photo, posted without a caption
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Битва за Трикафту - это битва за жизни и здоровье наших детей. А откуда главный пульмонолог взял 82 года - даже смелые прогнозы в Америке, где Трикафта с годика поголовно такого оптимизма не выдают.
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❓ Битва «Трилексы» и «Трикафты»: комиссия Минздрава перенесла рассмотрение препарата от муковисцидоза ивакафтор+тезакафтор+элексакафтор и ивакафтор на 7 августа Одним из главных хайлайтов сегодняшнего заседания было обсуждение включения в перечень ЖНВЛП препарата от муковисцидоза. Заявку на рассмотрение подал дистрибьютор аргентинского дженерика «Трилекса», Компания «МИК». ⏺️Главный внештатный специалист по медицин…
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💊 Дорогие коллеги, сегодня в 9:30 начнется заседание комиссии Минздрава по формированию лекарственных перечней! Рассматриваемые препараты ⬆️ ➡️ Ссылка на трансляцию: https://npm.minzdrav.gov.ru/participant/new/eyJpZCI6ODAxNn0= 🧐 Следите за новостями!
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И снова попытка внести нечто в список …
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💡 В ситуации, когда у нас не было света - Аэробика была полноценным и доступным кинезом. 🚗 🚂 Как и в дороге! ✈️⛵️ 💫 Напомню, про акцию до конца августа - я беру сразу по 4 штуки, чтобы на год - стерилизация в стерилизаторе с сушкой, промывка кипятком, замена каждые 3 месяца при флоре стаф (как и небулайзер, маска и тп) 👉 Заказ здесь: https://forms.gle/s8dkkizNgUB8fqPm6 Вопросы по закупке: к Светлане https://vk.r…
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Ссылка на мой инстаграм - пост про Север Крыма - там нужна помощь, прошу репостов 🙏 https://www.instagram.com/p/DaxeVIPs0If/?igsh=MXczMW1zejFmaHBxNA==
Еще про Крым: изменения в графике движения поездов - читайте на официальном сайте МинТранса (на сайте ГрандСервиса, РЖД, КЖД тоже) https://mtrans.rk.gov.ru/articles/25759cff-c28f-490c-a2ed-bea7fe11e0be
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Кто собирается в Крым - ситуация каждый день меняется. Сегодня 9 июня 2026. Едете в Крым: заправляйте полный бак и канистры (спец для бензина) не на последней заправке перед мостом, а за 100 км до него. Через мост разрешено провозить 100 литров жидкостей без учета бензина в баке (если взяли в дорогу две пятилитровки воды, например, то на бензин в канистрах остается 90 литров) Сохраните чеки с заправки - многие оте…
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Showing the 12 most recent of 20 posts we hold for @marinaryPROmucoviscidosi. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked ≈ was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.
Republishes
Channels on the register whose posts this channel has forwarded.
Built only from forwarded posts we have actually read, on both sides. Coverage is early and deliberately incomplete: a missing link means we have not read the post that would prove it, never that the relationship does not exist. Counts are distinct forwarded posts observed, so they only ever go up as we read more.
The reverse of the list above, and a different kind of signal. This does not require this channel to have ever been asked about directly — each row below is a channel we DID ask Telegram about, whose Telegram-generated list happened to include this one. A channel can appear here with an empty list above it, because being named by someone else’s query is independent of having been queried itself.
This channel appears in 1 seed channel's Telegram-generated recommendation list in total. Each is Telegram’s list for THAT channel, not this one — see how this is measured.
A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 18 September 2026 — this entry's latest reading, not the date you are reading this.
“Маринари ПРО муковисцидоз” (@marinaryPROmucoviscidosi), 1,325 subscribers as measured 18 September 2026. Telegram Register, tgregister.com/channel/marinaryPROmucoviscidosi.
Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.