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Channel

我们的声音

@life_with_disabilities

On this record: Growth · Engagement · What this channel posts · Reactions · Posts · Citations · Cite this entry

362subscribers

+3 since we began measuring on 7 August 2026

Risers and fallers across the register · movement among entries of Under 1,000.

Register entry

Telegram ID-1001161895837
TypeChannel
Username@life_with_disabilities
CreatedBetween 1 April 2018 and 31 July 2021— estimated from Telegram’s id allocation, not measured. How this range is calculated.
First recorded8 August 2026
Last confirmed live15 August 2026
Measurements held3
Confirmed unchanged1 time, most recently 15 August 2026
On Telegramt.me/life_with_disabilities

Growth

359362360.57 August 2026 — 359 subscribers8 August 2026 — 359 subscribers15 August 2026 — 362 subscribers7 August 202615 August 2026
3 measurements spanning 7 days, net +3. Dots are measurements; the straight line between them is drawn to join them, not to claim we know the path taken in between — snapshots are recorded only when a count changes, so gaps mean “no change observed”, never “interpolated”. The vertical axis spans 359–362 and does not start at zero.
Measurement log — every subscribers count we have recorded
Measured (UTC)SubscribersChange
15 Aug 2026, 00:43362+3
8 Aug 2026, 06:35359no change
7 Aug 2026, 21:52359first reading

Engagement

11 posts held, back to 1 February 2026the reader has not yet reached the start of this channel’s public history, so older posts may sit further back, unread. Read across 1 pageof Telegram’s post history, 20 posts per page.

Nothing published in the last 30 days. ERR and ER are rolling 30-day measures, so there is nothing to compute — we hold 11 posts for this entry, the most recent from 5 May 2026. An engagement rate over an empty window would be a number about nothing.

What this channel posts

Video runtime
2m 33s
Average length
1m 17s

Measured directly from 2 videos with a duration reading, out of the posts we hold for this channel — not this channel’s whole posting history, only the sample this register has actually read. An exact reading to the second, taken from the post itself rather than from Telegram’s own rounded chrome, so it carries no mark.

Reaction mix

1 reaction across 1 post, in 1 kind.

Every reaction kind recorded on the sample, most used first
ReactionCountShareShare, drawn
1100.0%

No sentiment is inferred, and none should be read in. This table is ordered by count and by nothing else. Emoji do not carry stable meaning across languages or communities — 🙏 is thanks in one channel and mourning in another — so we publish which ones were pressed and how often, and pass no judgement on what an audience meant by them.

Precision. Telegram publishes reaction counts per emoji and short-forms each one — 4.34K, 1.2M — so any single kind at or above 1,000 reaches us at three significant figures, and only counts below 1,000 are exact. The shares above are ratios of those figures and carry the same error. This is also why the total here can differ slightly from a reaction total printed elsewhere on the page: both are sums of the same rounded parts, taken over samples with different edges.

Coverage. Reactions were read on 1 of the 11 sampled posts in this sample. Summed by Telegram’s own count on each post — not by adding up the per-emoji breakdown above — those same posts carry 1reactions in total: the kind of figure the paragraph above means by “a reaction total printed elsewhere on the page”.

Measured over the 11 most recent posts we hold, published 1 February 2026 to 5 May 2026, using the newest reading held for each. Telegram Stars are excluded: they are a payment, not a reaction, and they have their own section.

Recent posts

5 May 2026, 15:13 UTC282 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

“学习如何接受无聊”对有注意力障碍(ADHD)的人来说非常重要。虽然你失调的多巴胺系统可能不是这么想的,但事实是,生活不仅仅只有精彩的那些部分。你得教会你的大脑接受无聊,让无聊的任务不再感觉像一种折磨。通过让自己感到无聊,你的大脑会慢慢意识到,把所有事情归为“无聊”和“不怎么无聊”并不是正确的分类方法。慢慢地,你会感觉到真正的“精彩”,而不仅仅是“不怎么无聊”。 去触摸花草。去听听你住所附近的各种声音。让你身体的感官接触自然,不仅能降低焦虑,而且能获得一种“我在真实生活”的感觉。 source

5 May 2026, 15:12 UTC213 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

最近我常常在想,和认知障碍(比如阿尔茨海默病,又称老年痴呆症)的患者相处时,学会如何交流真的非常重要,但偏偏很多人却对此毫无概念。因此我在这里简单列出几点建议,希望能为大家提供一些帮助 —— source

5 May 2026, 15:08 UTC152 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

今天是五一劳动节,是全世界劳动者的节日。 我在想我们这些有身心障碍的人。我们中很多人因为工作而落下了残疾。我们中很多人完全不能工作了。我们中也有很多人正在工作,却不得不面临工作环境中的刁难。还有很多公司随意打压拖欠我们的薪资... 无论你处于什么情况,无论你遭遇过什么,我都为你还坚强地活着而高兴。你努力活在这个世界上,就是对我们这个世界的不公正的反抗。 source

17 Apr 2026, 17:00 UTC157 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

科研专家:这种病现有的诊断标准让很多病人无法获得诊断 公益组织:传播科研专家的信息,帮助更多病人了解自己的病情 医疗机构:开始根据研究结果拓宽诊断标准 获诊病人:终于得以了解自己的病情 无良媒体:神秘怪病正在疯狂扩散!世界要完了! source

14 Apr 2026, 19:13 UTC152 viewsread 8 August 2026
Forwarded from @twitter_translate

我有一位教授是盲人。 上学期,我因为无法在原定时间参加这位教授的课的考试,所以去了他办公室补考。我走进办公室的时候还以为教授不在,因为办公室没有开灯。等了好一会儿,我才发现原来教授在办公室里好好地坐着的呢! 我和他打了招呼,然后走进办公室,坐到试卷前开始答题。虽然办公室里没有开灯,但从窗户里照进来的光线正好可以让我看清楚试卷。我们俩人没有再对话,办公室里一片安静。 大概考到四十五分钟的时候,只见我的教授像想起什么一样,慌张地大叫起来,“我忘了!你不是盲人!” 然后连忙站起来用最快的动作给我开灯。我想这位教授肯定觉得很不好意思,但其实我丝毫没有不开心,甚至还觉得有点有趣。 这次补考的经历让我近距离地接触到了身体有障碍的人的日常生活,而这些日常的很多细节是我原先完全无法想象到的,比如忘记给我开灯这件事情就是最明显的例子了。 https://vaspider.tumblr.com/post/76316893824694681

28 Feb 2026, 13:45 UTC281 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

很多人会觉得随着自己的长大,自己的注意力障碍“变严重”了。但事情很可能是:随着你长大,你需要做越来越多的事情,因此注意力障碍会影响到事情也越来越多了。 其它身心障碍也是如此,有时候你觉得你的障碍越来越严重了,但实际上只是因为你的环境发生了变化,让你的障碍更明显,也更容易妨碍你的日常生活了。 补充:如果这样的事情发生了,请不要觉得“都是我的错”。尝试寻求帮助或变换所处的环境可能会有助于你的生活。 source

25 Feb 2026, 22:05 UTC234 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

你们的科技末日预言,其实是我们残障者每天的生活。 source

17 Feb 2026, 10:00 UTC196 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

在想要走出那些有损于自己的习惯和成瘾问题的过程中,你就会慢慢发现,“复吸=失败”的概念,对你的整体健康和幸福有害无益。如果不是因为带来了太多痛苦和悲剧,这种概念一定会因为其荒谬绝伦而让人发笑的。 我和我女朋友说,请把戒烟这件事情当作耐力练习吧,尝试看看一次最多能不吸烟多久,然后调整休息再次出发,争取下一次能坚持更久。我女朋友说我的方法真的对她非常有用。 source

12 Feb 2026, 01:05 UTC162 views1 reactionsread 8 August 2026
Forwarded from @twitter_translateVideo

1. “索菲亚去你弟弟的婚礼的时候该穿什么?” “我觉得这件长裙很漂亮。” “我觉得这件花裙没有那么正式,更匹配索菲亚美丽的笑容。” “请让我决定关于我自己的事情!” “我难道不能为自己决定衣服吗?” “你觉得这种做法对我公正吗?” “请让我看看这两件裙子!” “你知道吗,这两件裙子我一件也不喜欢!” 2. “请看这是我们设计优美高效的火车站!” “请让我参与决定!” “请让我提醒你们,不是每个人都能走上你们这边的楼梯!” 3. “这是我们药房新的置物柜!” “也许你没有发现,我根本够不到这个置物柜!” 4. “如果你听到消防警铃,请立即逃生!” “如果警铃是唯一的提醒,而你是聋人又听不到警铃,那你很可能会命丧火场。” 5. “我们机场的信息现在可以通过这个触摸屏获取了!” “但我是盲人我看不到啊!” 6. “在我这个新任期,我会发布新的法律条令——” “你的条令影响到了我们有身心障碍的人的生活,但你却从没有听取我们的

1

12 Feb 2026, 01:05 UTC89 viewsread 8 August 2026
Forwarded from @twitter_translateVideo

“患有唐氏综合征的人没有获得社会平等的对待?真的吗?” 很高兴你问了这个问题。我来讲一下我们遇到的几种不公正的对待: ❶ 我们不受最低工资法的保护,有些企业只给我们一小时30美分(约2人民币)的工资。 ❷ 很多时候我们不敢结婚,因为结婚常常会让我们失去政府发放的生活补助。 ❸ 很多州的法律让我们在病重时无法器官移植,理由是,“唐氏综合征患者生活质量有限救助价值不大”。 ❹ 公立学校有权拒绝我们随班入学。 ❺ 因为人们先入为主认定我们“能力很差”,因此我们常常无法获得充分的教育机会、就业机会、以及日常生活而不被排挤的机会。 source

1 Feb 2026, 09:34 UTC227 viewsread 8 August 2026
Forwarded from @twitter_translatePhoto

健全人常常选择性地忽略有身心障碍的人的真实体验,还要把自己的感受强加到身心障碍群体的身上 —— 比如健全人会说,“你不得不坐轮椅,真是太糟糕了!” 但其实对我们来说,坐轮椅是一件非常开心的事情,轮椅让我们可以自由地去我们原来到不了的地方;可惜很多健全人不愿意站在我们的角度去思考这件事情,只会想着“如果我没法走路了那肯定很糟糕”。 比如健全人会说,“你每天吃这么多药,肯定很糟糕吧!” 但其实对我们有身心障碍的人来说,药物可以提升我们的生活质量,甚至是拯救我们的生命;我们很高兴可以获得药物的帮助;可惜很多健全人只会想“如果我每天吃这么多药肯定要承受很多副作用”。 比如健全人会说,“你只上半天班,肯定很轻松吧!” 但其实很多有身心障碍的人只上半天班,是因为我们没有能力上一整天班;我们很可能必须休息半天来缓解我们因为上班带来的劳累,而这段时间里我们大概率只能卧床休息;对我们来说,病假根本不是什么“可以轻松玩乐”的时间。 类似的例

Showing the 11 most recent of 11 posts we hold for @life_with_disabilities. View and reaction counts are the latest single reading for each post, not a live figure, and a recent post is still accumulating both. A view count marked was rounded by Telegram before we ever saw it — t.me prints views in full below 1,000 and to three significant figures above, so ≈1,200,000 means somewhere between 1,150,000 and 1,249,999. Unmarked counts are exact. Text is reproduced from the public post preview and truncated for length.

Forward network

Republishes

Channels on the register whose posts this channel has forwarded.

Built only from forwarded posts we have actually read, on both sides. Coverage is early and deliberately incomplete: a missing link means we have not read the post that would prove it, never that the relationship does not exist. Counts are distinct forwarded posts observed, so they only ever go up as we read more.

Cite this entry

A live page changes as we take new readings, so a citation should name the measurement it is based on, not just the URL. The line below cites the subscriber count as measured 15 August 2026 — this entry's latest reading, not the date you are reading this.

“我们的声音” (@life_with_disabilities), 362 subscribers as measured 15 August 2026. Telegram Register, tgregister.com/channel/life_with_disabilities.

Full measurement history, CC BY 4.0. Every reading this register holds for this entry, not just the latest one, as a dated, downloadable record: CSV · JSON. Free to use with attribution to tgregister.com. Each file carries its own generation timestamp, which is the figure to cite for exactly when the data was retrieved.